Will the Minister confirm whether there has been any further progress between Vertex Pharmaceuticals, NHS Wales and the All Wales Medicine Strategy Group regarding access to the cystic fibrosis medicine Orkambi?
Answered by Minister for Health and Social Services | Answered on 22/01/2019
The All Wales Medicine Strategy Group contacted Vertex Pharmaceuticals again in November 2018 but the company has not submitted Orkambi® for appraisal. It is for the company to offer a specific commercial arrangement for Orkambi® with the NHS in Wales, taking account of the concerns around cost and clinical benefit previously identified by NICE.